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sobota, 25 kwietnia 2026 03:54
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Pomóżmy małemu Michasiowi w walce o życie

Michał Bień choruje na dystrofię mięśniową Duchenne, rzadką chorobę genetyczną, prowadząca do postępującego i nieodwracalnego zaniku mięśni. Jest ona jednym z najczęstszych i najszybciej postępujących zaburzeń nerwowo-mięśniowych. Od zeszłego roku jest dostępny lek hamujący rozwój tej choroby. Bez tego leku Michał nie dożyje dorosłości, pozostawiając swojego brata bliźniaka Marcela. Koszt terapii jest olbrzymi i wynosi 15 mln zł. Środki zbierane są przez fundację Siępomaga i w ramach organizowanych przez rodziców licytacji. Niestety przeprowadzane akcje nie pozwoliły uzbierać wymaganej kwoty. O pomoc w rozpropagowanie zbiórki, rodzice zwrócili się m.in. do Urzędu Marszałkowskiego. Materiał przygotowany we współpracy z Lubuskim Centrum Informacyjnym.
  • Waldemar Uberna
  • 25.04.2024 13:55
Pomóżmy małemu Michasiowi w walce o życie

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Data dodania: 25.04.2024 13:55
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